~~~YANA~~~

(You Are Not Alone!) Just a place to vent and let loose! Add your comments or any advice. All are welcome! Enjoy!

Monday, January 23, 2006

I am a Participant in a new study!

Good Morning!

Well, I am now a participant in a Chronic Illness Study with Dr. Barreiro and Binghamton University. My first appointment is Fri. Jan. 27th at 10:30 A.M. It is such a breath of fresh air to have a doctor so willing to get to the root of the problem and try to fix it. It might take a while. It might take A LOT of trial and error. But, as long as he is willing to try and do what it takes then I am willing to participate and help him out as well. He is doing studies on Fibromyalgia, Chronic Fatigue Syndrome, Irritable Bowel Syndrome, Irritable and Over Active Bladder, Migraines, etc.. Needless to say I suffer from almost all of the above. So, this will be tremendous for me.
Here is a link to the study:
http://inside.binghamton.edu/news/newspage.cgi?issue=2004mar18&id=2

A little insight to how I started feeling so sick.

Jan of 2001 I found out I was pregnant with my second child. Had a very horrible pregnancy. I was sick the whole pregnancy, in a lot of pain, and bled through out the whole thing. I was always seeing the midwife. Always complaining that there was something wrong. When I was 35 weeks pregnant I BEGGED for them to take me in and deliver. There was just something not right. I shouldn't feel this badly. But they wouldn't do it. They kept insisting everything was OK. Well, Aug. 25th I woke up and had this horrible feeling. Something wasn't OK. I was feeling this weird kind of sick. I just knew something was wrong. Well, I hung out at home, rested, and spent the day trying to get the baby to move. She didn't. I ended up in the hospital where they did an ultrasound and found that her heart was no longer beating. Imagine how that must have felt. My baby was gone. I was in such shock and in such a state of mourning that I just didn't handle anything they way I should have. That night they induced me for labor. Now, keep in mind, my first pregnancy was a C-Section because my sweet little girl was breech. Aug. 26th I was rushed into surgery for a C-Section. My uterus ruptured. I almost died. It was one of the worst ruptures my doctor had ever seen. (Eventually after research and my medical records the hospital and my ob/gyn's are in fault and needless to say in a lot of trouble.) So, after that my body went crazy. I was never the same. In Oct of 2001 I was diagnosed with Fibromyalgia, and I have been suffering from it ever since. My primary physician is doing all that he knows to do. But unfortunately its just not enough. I have more bad days then I do good. So, thats what brings me to this study. Any help is GREATLY appreciated. I cannot wait to go on Friday! In June of 2002 I ended up having a hysterectomy. Due to the extent of the ruptured I was advised that trying to have another baby wasn't a good idea. The chances of my uterus rupturing again and me dying was increased ten fold. During my hysterectomy surgery they found that my uterus grew into my bladder so I had to have my bladder repaired. My bladder has never been the same. I suffer from 10 to 12 urinary tract infections a year. My bladder is very weak. I also suffer from adhesions which is scar tissue. They attach themselves to whatever they want and this causes tremendous pain as well. So, that is my story. I suffer from a lot more. I am sure I will address certain issues I have in future blogs.

So, thats my story. I am a very sick person. And its so sad because all of this could have been avoided. But due to lack of care I am all screwed up.

BUT -- I do have one little girl who I am just crazy about. She is my special angel. She makes life worth living.

Thanks for letting me blab. Its really needed every now and then!

Till next time --
Jen

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